Centre for Population Genomics
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Development of culturally-aligned and language-appropriate participant information and education resources for Australian ethnic minority ancestry groups under-represented in clinical and population genomics research

(PI: Professor Daniel MacArthur, Centre for Population Genomics & Mary-Anne Young, Garvan Institute of Medical Research)

Despite Australians’ very diverse ancestry backgrounds, genomics research in Australia suffers from a lack of diversity in research cohorts and reference datasets. Unless active steps are taken to address this, current rapid advances in genomic medicine will not benefit many CALD Australians. A basic obstacle is the lack of appropriate explanatory materials. This project will implement and document a best-practice approach to creating culturally-aligned and language-appropriate participant information and education resources for use in clinical and population genomics research. We will produce a core set of materials in English and ten languages that are a priority for genomics in Australia (Arabic, Dari, Farsi, Fijian, Hazaragi, Samoan, Tagalog, Tongan, Urdu, and Vietnamese), make the materials openly available for use by any program, and share our methodology to allow further languages to be added. 

The Centre for Population Genomics is a national initiative, jointly housed at the Garvan Institute of Medical Research and the Murdoch Children’s Research Institute. We work all across the country and collaborate with partners internationally and in Australia.

At CPG, we celebrate and respect diversity in our team and our work. We believe that including all human diversity in genomic research will empower medical care that benefits everyone.

We acknowledge the First Australian peoples on whose traditional lands we live and work across the country and pay our respects to their elders past, present and emerging. We gratefully accept the invitation in the Uluru Statement from the Heart “to walk with us in a movement of the Australian people for a better future”.

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